by admin | Oct 23, 2018 | News, Past Events
We are delighted to be the chosen Charity of the Year for the annual SOFHT presentation lunch being held in London on 15th November with Kate Quilon, journalist, producer and who will present the ‘The Inside Story’. For the last few years, Kate has juggled a career...
by admin | Oct 12, 2018 | Fund Raising, News
You can now support Cystic Fibrosis Care by purchasing one or more of our wristbands now: The cost per wristband is £2.50, including postage and packing. Place your order by selecting one of the options below: CFC Wristbands 1 wristband £2.50 GBP...
by admin | Sep 12, 2018 | Fund Raising, News
💙What a weekend at the Great North Run 2018! A note from our Director, Pat Kilpatrick: “I made it to the end, I was so proud to receive my GNR medal. Thank you to everyone who has so generously sponsored me, it is so very, very kind. Your sponsorship will be helping...
by admin | Sep 8, 2018 | News
ORKAMBI – What is the way forward and could more CF suffers be benefiting? It is thought that there are 420 patients taking Orkambi sponsored by Vertex in the UK, but there is a potential of 3200 children and adults who could benefit at this point in the UK. It...
by admin | Sep 7, 2018 | Fund Raising, News, Past Events
Entries are still open for our annual 55 mile biking challenge! Passing through 5 counties, with full marshalling support, water stops and refreshments at the half way point. Plus tea, sandwiches and homemade cake at the end! All raising much needed funds to support...
by admin | Aug 14, 2018 | News
‘Two little stars with Cystic Fibrosis win gold medals’. ITV’s Paul O’Grady show, Little Hero’s, last night featured eight-year-old Emily and her five-year-old brother Luke. They told Paul about their ongoing treatment for...
