William Marler

William Marler an award-winning animator, keen runner, and Cystic Fibrosis patient is supporting his mum and dad, Liz (55) and Jerry (59) to run the Manchester Marathon on 5th  April 2020 to raise funds for Cystic Fibrosis Care. Taking inspiration from their son...

Midlands Part Time Community Fundraiser

Cystic Fibrosis Care require a Community Fundraiser for the Midlands to work from home part time.  17.5 hours per week. Responsibilities will include; organising fundraising activities, approaching businesses, schools, universities; developing new fundraising...

SOFHT 40th Annual Lunch & Awards 2019

Cystic Fibrosis Care was the chosen charity partner for The Society of Food, Hygiene and Technology annual lunch and awards on 14th November 2019. Over £5,541 was raised at an exclusive event featuring TV presenter and journalist Matt Allwright. Photo shows Patricia...

NHS England agrees to fund Orkambi drug treatment

Cystic Fibrosis Care is delighted that the NHS will fund Orkambi drug treatment Up to 5,000 patients in England will benefit from the life extending medicationIt slows the decline of lung function and will be available to them within 30 days Deal, thought to be...

Jess Spoor Cycle Challenge

In August this year, Cystic Fibrosis patient, Jess Spoor cycled on her electric bike from Leeds over the Pennines from Whitehaven to Tynemouth raising over £6,500 for Cystic Fibrosis Care. 30 year old Jess from Chapel Allerton in Leeds took her own oxygen tank to...

Head Shave Live on TV

Darts player Daryl Gurney lost his good friend Aaron Mcmenamin to Cystic Fibrosis in 2017 and raised over £15,000 for Cystic Fibrosis Care to shave his hair live at the BBC champions league of darts this October. Daryl Gurney has raised over £15,000 for the Cystic...