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About us

Established in June 2015 Cystic Fibrosis Care is a charity formed and run by professional fundraisers who are parents of children who have Cystic Fibrosis. The charity provides essential services and equipment, practical help and support to children and adults, their families and Specialist Care Centres.


Our mission is to help people with Cystic Fibrosis. To support high quality CF care, promote public awareness of Cystic Fibrosis, and raise and allocate funds for these purposes.


A world where those with Cystic Fibrosis can access the care they need and CF is no longer a progressive life-shortening disease.


Cystic Fibrosis Care is committed to, and encourages the fostering of the following four values:

  • Excellence
  • Caring
  • Accountability
  • Teamwork

Strategic Directions

Our strategic directions provide a roadmap for Cystic Fibrosis Care as we continue to deliver on our mission and in achieving our vision, and form the basis of our corporate goals, objectives and priorities. Together, we have our sights on providing and enabling much needed care support.

Our strategic directions are:

1. Build and achieve sustainable revenue growth in order to invest in care, advocacy and essential equipment for the individual with CF and their Specialist Treatment Centre

2. Support and enable Emotional Support and Counselling through critical times of stress and difficulty

3. Support excellence in CF care in order to ensure patients receive improved quality of care

4. Align our organisational resources in order to deliver on our mission

Whether you are major donor or grass roots volunteer the question remains the same: How does my support make a difference? Cystic Fibrosis Care will work hard to ensure donations and funds raised will be used to improve the lives of those with CF and look to build a strong organisation for the future.

Our Trustees

Christy York

Chairman of the Board of Trustees for Cystic Fibrosis Care

CF Parent

Catherine Sunley

Financial Director of Sherwoods Garages North East and JP

Martyn Rose

Chairman of several UK companies
Chairman of Floreat Education Academies Trust

Sasha York

Key Fundraiser

Charity Director

Patricia Kilpatrick