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A Guide to Further Help

Food

The Trussell Trust have over 1,300 food bank centres. They also offer debt advice, mental health support, or benefits guidance. – www.trusselltrust.org

Local Foodbanks – Many areas have local independent food banks. Search ‘foodbank near me’ 

Too Good to go – Discounted surprise bags of food, which would be thrown away, are available on the ‘Too good to go’  app https://www.toogoodtogo.com/en-gb/user

Baby Banks – Listed on www.netmums.com/local/baby-banks

Pregnancy and Baby Freebieshttps://babyessentialslist.co.uk/pregnancy-freebies-free-baby-stuff-samples/ This site has a helpful list of free samples etc. for babies.

Your social worker can refer you to a local foodbank.

CF Care can make referrals to the Trussell Trust.

Energy

Local Council Help: Your local council might be able to help you get a fuel voucher towards your energy costs.

Which Guide – Under the Government’s ECO scheme, it is possible that you could qualify for a grant to have your old inefficient boiler replaced free of charge. Grants are available to households in receipt of certain qualifying benefits including Job Seekers Allowance, Income Support, Working Tax Credits, Universal Credits, Disabled, Attendance Allowance, and Carer’s Allowance, so long as your boiler is overdue for replacement.www.which.co.uk/reviews/boilers/article/buying-a-new-boiler/boiler-grants-can-i-get-a-free-boiler

National Energy Action: information, advice and help www.nea.org.uk/get-help

Government schemes – Through the Boiler Upgrade Scheme, you could get a grant to cover part of the cost of replacing fossil fuel heating systems with a heat pump or biomass boiler. www.gov.uk/apply-boiler-upgrade-scheme

You could get £150 off your electricity bill for winter 2023 to 2024 under the Warm Home Discount Scheme, if you either:

If you’re struggling to pay for your energy and you’re on certain benefits, you may be able to pay directly from your benefit payments instead, under a Government scheme known as Fuel Direct www.gov.uk/bills-benefits

The benefits that can be used are:

  • Universal Credit
  • income-based Jobseeker’s Allowance (JSA)
  • income-related Employment and Support Allowance (ESA)
  • Income Support
  • Pension Credit

www.gov.uk/government/collections/find-energy-grants-for-you-home-help-to-heat

Water

If you have a water meter, it may also be possible to get a reduced or capped bill through the national WaterSure scheme, available through all water companies. Each water company may have their own criteria for qualification and may also offer other schemes to families who are struggling to pay bills.

To qualify for Watersure, you (or someone living with you) must be receiving at least one eligible benefit AND have either three or more children under the age of 19 in full-time education, or have a medical condition that means you use extra water.  www.moneysavingexpert.com/utilities/cut-water-bills/#watersure

Council Tax

Apply to your local council for Council Tax Reduction (sometimes called Council Tax Support).

You’ll get a discount on your bill if you are eligible.

Free or cheap second-hand items

The Reuse Network -Search for a reuse charity near you with the online tool – www.reuse-network.org.uk

Freecycle – You can advertise for items wanted and see what is on offer – www.freecycle.org

Freegle –  similar to freecycle  www.ilovefreegle.org

Gumtree  www.gumtree.com

Preloved  www.preloved.co.uk

Facebook Marketplace although beware of scammers and never pay anything upfront.

Advice

NHS Useful information  www.nhs.uk/conditions/cystic-fibrosis

Citizen’s Advice Bureau – As well as offices throughout the country, they also have an online help facility www.citizensadvice.org.uk

Money saving expert – This site has lots of useful money saving advice www.moneysavingexpert.com

Turn2us – Includes a benefits calculator and grants search:

www.turn2us.org.uk

https://benefits-calculator.turn2us.org.uk

https://grants-search.turn2us.org.uk

Disability Support project  can help with benefit applications, appeals and tribunals for CDLA – Child Disability Living Allowance. PIP – Personal Independence Payment. ESA – Employment and Support Allowance. Blue Badge – Disabled Parking, Appointeeships, AA – Attendance Allowance  www.dspuk.org.uk/cystic-fibrosis

PIP Claim –  www.gov.uk/pip/how-to-claim. Always ask for assistance from your CF Team or social worker as you will need a medical letter to support your PIP claim

Families Firstis a government scheme run by local council authorities for Families experiencing or at risk of worklessness, homelessness or financial difficulties, or young people who are not in education, employment or training (NEET) and Parents and children with health needs relating to mental health and/ or substance use. Parents or children involved in, or at risk of involvement in, crime or anti-social behaviour and Families affected by domestic violence and abuse. Ask for assistance from your social worker to see if you could qualify for help through this scheme. 

Samaritans Free Telephone Line 116 123

CF Charities

Cystic Fibrosis Care – providing patient support in times of difficulty, contact your CF Team, to be referred.

Cystic Fibrosis Comfort Fund – A Bristol based charity helping people with CF within a 50 mile radius   www.cfcomfort.co.uk

CF Dream Holidays – Charity which provides respite holidays in the UK for families who have a child with Cystic Fibrosis. www.cfdreamholidays.co.uk

CF Warriors – Parents can apply for their child to receive a ‘CF Warrior Pack’, and become part of a team that aim to stay fit and healthy. www.cfwarriors.org.uk

CF Trust – Large National charity www.cysticfibrosis.org.uk