Cystic Fibrosis Care – Privacy Policy

At Cystic Fibrosis Care we are committed to protecting your privacy online. We protect any personal information you give us while you use our website.

This policy is written in accordance with the General Data Protection Regulation Act 2018. If you have any questions about it, please contact us at or call 01677 470469.

This Privacy Policy applies to the website. By continuing to use this Website you are agreeing to the processing of your personal information in accordance with this privacy policy.

What information do we collect?

Personal information is any information that can be used to identify you. For example, it can include information such as your name, date of birth, email address, postal address, telephone number, fax number and credit/debit card details, as well as information relating to your health or personal circumstances.

We collect personal information from you when you ask about our activities, register with us, (eg registering for an event), order products and services from us (such as publications and email newsletters), make a donation to us, fundraise on our behalf, or otherwise give us personal information.

We may also obtain personal information about you from other sources, such as if a family member or friend contacts us on your behalf, or if a fundraiser passes on your details to us. We may also combine your personal information with other information we collect from third parties (eg for fundraising purposes).


Cystic Fibrosis Care treats your contact with us as confidential unless there is a risk of serious harm or abuse to you or someone else. In this instance, we may have to pass this information onto a third party such as the emergency services.

How do we use your information?

We use your information in the ways set out below.

  • We use your personal information to give you the information, support, services, or products you ask for.

  • We use your information to gain a full understanding of your situation, so we can develop and offer you the best possible personalised services.

  • We use your information for internal administrative purposes (such as our accounting and records), and to let you know about changes to our services or policies.

  • We may use your information to send you communications about our work and how you can help us to help you, for example, information about our campaigns, volunteering and fundraising activities. You can let us know if you would prefer not to receive these communications at any time by emailing  or calling 01677 470469

  • We may combine your information with other information (for example, from public records or on social media) and create a profile of your interests and preferences. We do this to help us determine whether and in what ways you might be interested in helping us or getting involved in our activities.

  • We use your personal information look into, and respond to, complaints, legal claims or other issues.

  • We use your personal information to claim Gift Aid on your donations.

  • We may also use your personal information for other purposes which we specifically notify you about and, where appropriate, obtain your consent.

Who do we share your information with?

We will not sell your details to any third parties. We may sometimes share your information with our trusted service providers who are authorised to act on our behalf, this includes organisations who fundraise on our behalf.

We may share information with our financial and legal advisers for the purposes of obtaining advice and protecting our legal rights.

Cystic Fibrosis Care are responsible for collecting your personal information.

When we collect your personal information we use strict procedures and security features to prevent unauthorised access. However, no data transmission over the Internet is 100% secure. As a result, while we try to protect your personal information, Cystic Fibrosis Care cannot guarantee the security of any information you


The Cystic Fibrosis Care website may include links to other sites, not owned or managed by us. We cannot be held responsible for the privacy of information collected by websites not managed by us. 

If you’re 16 or under

If you’re aged 16 or under, you must get your parent/guardian’s permission before you provide any personal information on the Website.

Accessing and updating your personal information

You can request access to any information we hold about you by contacting us at the above address. Equally, please let us know of any changes at the above address.

Opting Out

If you would prefer not to be contacted you will be removed immediately from our list of contacts, please email or phone 01677 470469.

Changes to this policy

We may change our privacy policy from time to time so please check back periodically.

This policy was last updated 18th jan 2024.