by Jan Dick | Nov 16, 2023 | News
Hannah Gray from the Patient and Public Involvement at York and Scarborough NHS Trust is supporting the York & Hull Service team with their promotion of the CF Trust Patient Experience survey and reviving our engagement activity with adults with CF. ‘I...
by Jan Dick | Nov 8, 2023 | News
We are supporting the CF community and will fight for access to Kaftrio for all ages. We will forward your story to NICE in support of Kaftrio for 2-5 year olds. Email contactus@cysticfibrosiscare.org.uk. On November 3rd, NICE released an update on their assessment of...
by Jan Dick | Oct 12, 2023 | News
CYSTIC FIBROSIS CARE CELEBRATES £39,500 INVESTMENT IN LEEDS The Seacroft Cystic Fibrosis Outpatients Unit and St James CF Unit in Leeds opened newly refurbished facilities thanks to a significant investment of £39,500, generously provided by Cystic Fibrosis Care, a...
by Jan Dick | Oct 5, 2023 | News
Dear Supporters, The Benefact Group are giving one more chance for your favourite charity to win £1,000 for this year through their Movement for Good campaign. Cystic Fibrosis Care could win £1,000 in the third round of draws which are scheduled to take place in...
by Jan Dick | Oct 5, 2023 | News
Mulongwe Mwelwa is a Trainee Clinical Psychologist who is conducting research for a thesis on the experiences of adults with Cystic Fibrosis who are unable to benefit from triple combination therapy due to genetic factors. She is seeking to interview 6-8 individuals...
by Jan Dick | Sep 20, 2023 | News, Past Events
CF Care have four willing volunteers who will be jumping out of a plane to raise funds to help people with Cystic Fibrosis. Due to blustery winds the jump has been postponed. We will keep you updated on the rearranged date. But there is more time to visit the just...
