To take part go to ltc_study
Survey closes soon.
This study is helping us to test a new questionnaire to assess distress related to living with
a long-term physical health condition
• Taking part in this study includes completing two online questionnaires, 1 week apart.
1 Why are we doing this study?
Low mood, anxiety and emotional distress is common in people living with long-term health
conditions. We know that distress is often experienced differently by people living with a long-
term condition, compared to those without a diagnosis. In this study, we want to create and test
a new scale to measure the distress related to living with an illness, which could be used in both
clinical practice and research to help better support people living with long-term health
conditions.
2 Why am I being asked to take part?
We are inviting you to take part as you have responded to our social media advertisement. We
are recruiting people who:
– have a physical long-term condition
– are aged 18 years or older
– are based in the UK.
You cannot participate if you:
– Are not based in the UK
– You are under the age of 18
– You do not have a diagnosis of a physical long-term condition
What are the possible benefits and risks of taking part?
There are no direct benefits to participating in this study, except that you can opt into taking
part in a prize draw. You will receive one entry each for completing the baseline questionnaire
and the 1-week follow-up questionnaire. There are 5X £100 vouchers available to be won. The
risk in taking part in this study is minimal. Some people may find it distressing to answer
questions about their physical and/or mental health. If you feel you need more support, you
can contact a member of the research team ltc-study@kcl.ac.uk. If you are experiencing a lot
of distress, there are people who want to help. You can contact the Samaritans on 116 123
(open 24 hours a day, 7 days a week) or Mind on 03001233393 (Mon-Fri, 9am-6pm).