The petition to fund continued access to modulators drugs for Cystic Fibrosis patients has reached over 55,000 signatures and has only been running since the 15th November.
The petition needs 100,000 signatures to be considered for a debate in parliament so please sign using the link below.
Please help cystic fibrosis patients have continual access to life-changing modulator medication, after the news on the 3rd November from NICE that it believes these clinically proven medications are not cost effective for the NHS to use
CF is a life limiting, genetic condition that affects the lungs and organs. Patients take numerous types of medication daily to help the symptoms of this disease. These modulator drugs are the first to target the faulty CFTR gene.
The modulator drugs have improved the lives of many cystic fibrosis patients already.
We want the Government to ensure access to these life changing drugs.