Cystic Fibrosis Story: Jonny Simpson

Cystic Fibrosis Story: Jonny Simpson

CF Stories: Jonny Simpson We caught up with Jonny Simpson at the Bodytek Fitness gym in Carlisle where he talked about life growing up with Cystic Fibrosis.   Jonny travels to Newcastle regularly for his care to see Dr Stephen Burke director of CF Adult Centre at...
BBC Great Ormond Street Raise Cystic Fibrosis Awareness

BBC Great Ormond Street Raise Cystic Fibrosis Awareness

BBC – Great Ormond Street Series 3 : 2 Several children with failing lung function with Cystic Fibrosis were filmed during their time at Great Ormond Street Hospital showing the lead up to their transplant. This was one of the most moving programmes, you can...
Cystic Fibrosis Story-line Introduced Into Eastenders

Cystic Fibrosis Story-line Introduced Into Eastenders

BBC – East Enders  – most watched TV Soap      The Cystic Fibrosis storyline in East Enders with Shirley Carter finding her granddaughter Jade and discovering she has CF in the episode on 12 June has created a huge amount of awareness. Jade is the daughter...
Encouraging News in Cystic Fibrosis Gene Therapy Research

Encouraging News in Cystic Fibrosis Gene Therapy Research

BBC TV report  – Gene Therapy Results The CF community have been waiting for Gene Therapy research results and on 15 July BBC News interviewed Professor Alton of Imperial College London described the Gene Therapy Trials as ‘being encouraging’. Pat Kilpatrick...
Join a Fundraising Challenge

Join a Fundraising Challenge

The Cystic Fibrosis Care charity is currently in talks with the adventure fundraising company Discover Adventure. Together we will be bringing you the most exciting fundraising adventure opportunities, from cycling the Great Wall of china and trekking in Nepal. For...