by admin | Jun 14, 2022 | News
In an important research study, patients enrolled at the Leeds Adult CF Unit to examine whether reducing the dosage of Kaftrio (Trikafta) would reduce undesirable side effects, while maintaining therapeutic benefits. Here are the results as reported by Cystic Fibrosis...
by admin | Feb 15, 2022 | News
Huge thanks to Snape Village who have supported Cystic Fibrosis Care with the Lottery Bonus Ball Draw! They donated £116 and gave wonderful toys to children suffering with CF who had nothing to look forward to at Christmas. The charity has never been so busy handing...
by admin | Jan 15, 2022 | News
After another challenging but enjoyable year, we are pleased to publish our 2022 Newsletter, highlighting the work we have been doing over the past 12 months. Simply click the link below to download the newsletter, and find out how we have been fundraising and...
by admin | Jan 12, 2022 | News
The life-saving Cystic Fibrosis drug Kaftrio, has been approved by the UK Medicines & Healthcare products Regulatory Agency! It will be available for children aged 6 to 11 in a few weeks time. This will be life changing for so many and will...
by admin | Dec 29, 2021 | News
The Great Gingerbread Bake Off 2021 ends on December 31st. That means you have just 2 days to get your entries in! We are running The 2021 Great Gingerbread Bake Off to raise awareness and money for those with Cystic Fibrosis to provide them with AB face masks and...
by admin | Nov 16, 2021 | News
On Tuesday 30th November, Giving Tuesday takes place. It’s an opportunity to raise funds for cystic fibrosis patients in the UK, to help improve their quality of life. As a charity, we provide essential services and equipment, practical help and support to...
