by admin | Sep 8, 2018 | News
ORKAMBI – What is the way forward and could more CF suffers be benefiting? It is thought that there are 420 patients taking Orkambi sponsored by Vertex in the UK, but there is a potential of 3200 children and adults who could benefit at this point in the UK. It...
by admin | Sep 7, 2018 | Fund Raising, News, Past Events
Entries are still open for our annual 55 mile biking challenge! Passing through 5 counties, with full marshalling support, water stops and refreshments at the half way point. Plus tea, sandwiches and homemade cake at the end! All raising much needed funds to support...
by admin | Aug 14, 2018 | News
‘Two little stars with Cystic Fibrosis win gold medals’. ITV’s Paul O’Grady show, Little Hero’s, last night featured eight-year-old Emily and her five-year-old brother Luke. They told Paul about their ongoing treatment for...
by admin | Jul 9, 2018 | Fund Raising, Past Events
The amazing Christine, Sally, Sara and Shona have committed to attempt the English Channel as a four lady relay, in support of us at CF Care. 22miles of open water, jellyfish, tankers, cold water with a swimming costume, goggles and a silicone hat from Dover to Cap...
by admin | Jul 9, 2018 | News
It was a fantastic turnout and a great morning of sharing knowledge with like minded people on Saturday 7th July. Hearing first hand about the new treatments being developed to treat CF, was invaluable. Many thanks to Dr Edward Nash and Dr Maya Desai, as well as...
