William Marler

William Marler an award-winning animator, keen runner, and Cystic Fibrosis patient is supporting his mum and dad, Liz (55) and Jerry (59) to run the Manchester Marathon on 5th  April 2020 to raise funds for Cystic Fibrosis Care. Taking inspiration from their son...

Midlands Part Time Community Fundraiser

Cystic Fibrosis Care require a Community Fundraiser for the Midlands to work from home part time.  17.5 hours per week. Responsibilities will include; organising fundraising activities, approaching businesses, schools, universities; developing new fundraising...

SOFHT 40th Annual Lunch & Awards 2019

Cystic Fibrosis Care was the chosen charity partner for The Society of Food, Hygiene and Technology annual lunch and awards on 14th November 2019. Over £5,541 was raised at an exclusive event featuring TV presenter and journalist Matt Allwright. Photo shows Patricia...

NHS England agrees to fund Orkambi drug treatment

Cystic Fibrosis Care is delighted that the NHS will fund Orkambi drug treatment Up to 5,000 patients in England will benefit from the life extending medicationIt slows the decline of lung function and will be available to them within 30 days Deal, thought to be...