Useful links to organisations for Cystic Fibrosis patients and families for support with:
- Education
- Holidays
- Benefit advice
- And general information
- Joseph Levy Foundation Educational Fund Website https://www.jlef.org.uk/
If you are a student needing additional support and fulfil the following criteria you could eligible to apply for an educational grant from the Joseph Levy Foundation Education Fun
- Having Cystic Fibrosis.
- Being a UK resident.
- Wanting help to take a course at an accredited university, college or other educational institution or course provider.
- Being 18 or over at the time your course is due to start or, if you are not moving into formal further education and you wish to undertake vocational training instead, you can apply when you are 16 or 17 as well.
2. Turn2Us https://www.turn2us.org.uk
If you are struggling financially or in need of information about benefits, you may find helpful the link to an organisation called Turn2Us that has a grant search tool on their website which is really useful http://grants-search.turn2us.org.uk/
3. CF Dream Holidays www.cfdreamholidays.co.uk
Dream Holidays for a CF family. They only accept referrals from a CF medical professional, such as a CF nurse or CF social worker. Get in touch here: https://www.cfdreamholidays.co.uk/contact-us
4. CF Holiday Fund https://www.cfholidayfund.org.uk/
Call 0207 61613
5. CF Medicine https://cysticfibrosis.online/
Cystic Fibrosis in Children and Adults: The Leeds method of management a resource for the treatment and management of Cystic Fibrosis.
6. Other useful websites: