Privacy Policy

Cystic Fibrosis Care – Privacy Policy

CF Care Privacy Policy for our Website

All information that we hold concerning you as an individual will be held and processed by Cystic Fibrosis Care strictly in accordance with the provisions of the Data Protections Acts 1998 and Electronic Communications 2003 (EC Directive). Such Data will be used by our Organisation to administer our relationship with you as a valued supporter and to provide you with information about the CF Care activities, events and news.

Personal Information:

The CF Care collects details provided by you for the purpose of making donations, subscribing to our newsletter, sponsoring someone taking part in an event and making a direct debit. All relevant information will be stored on a computerised database system which can only be administered by Cystic Fibrosis Care staff. To be removed from this database at any time please email:

Use of Information:

Cystic Fibrosis Care will use your collected information to contact you regarding relevant information and news updates regarding the association and its activities. We will contact you by the information you provided upon signing up to CF Care.

We will not, without your consent, supply your name and addresses to any third party except where (1) such transfer is a necessary part of the activities that we undertake, or (2) we are required to do so by operation of law. Transfers to 3rd parties will only be undertaken for the purposes of our mail-outs and will be done in a strict and controlled manner.

Website Information:

When you are on the website and are asked for personal information, you are sharing that information with Cystic Fibrosis Care alone, unless stated otherwise. For online donations and registration details for an event, information is stored for the purpose of issuing a receipt. Additional information will only be sent if requested when filling out the online payment form.

Sensitive Credit/Debit Card Information:

All credit and debit card transactions that take place on your behalf by PayPal with secure server software. The software protects credit/debit card information and prevents anyone obtaining access to your credit information when you are processing your transaction.  Cystic Fibrosis Care do not keep your payment card information on record.

Right to Information:

As an individual, you have a right under the Data Protection Acts to obtain information from us, including a description of the data that we hold relating to you, and to have any inaccurate information rectified. Should you have any queries concerning this right please email: or call 01677 470469. Or write to: Cystic Fibrosis Care, Head Office: Westgarth, Snape, Bedale, North Yorkshire DL8 2TJ

Your personal data is protected by UK legislation, specifically the Data Protection Act 1998, and the Privacy and Electronic Communications (EC Directive) 2003. We aim to exceed our legal obligations by following best practice and reviewing our procedures regularly.